5. Death in life, the loss of purpose

5. Death in life, the loss of purpose

Sixty-five days after being diagnosed with stage 4 Uterine #Leiomyosarcoma with lung metastases, I had a phone session with an oncological nurse turned coach from the Centre of Quality of Life in the Netherlands Cancer Institute Amsterdam. Her job is to offer mental...
4. If it is to be it is up to me

4. If it is to be it is up to me

ingFifty-eight days ago I was diagnosed with stage 4 Uterine Leiomyosarcoma with 11 detectable metastases in both lungs. Incurable and palliative. Since then I have been in the care of the Netherlands Cancer Institute and Preventive Medical Centre. Fifty-seven days...
3. To grieve or not to grieve

3. To grieve or not to grieve

Forty-eight days since I was labeled palliative with a very rare cancer, Uterine Leiomyosarcoma with metastases in both lungs. Conventional treatment is limited to protocol which simply means limited personalised treatment. My life and that of my husband and son...
2. No New Year’s resolutions

2. No New Year’s resolutions

I’ve never really been one for New Year’s resolutions. Do you know why? Because I’ve always done what I wanted to do. Never waited, never made big plans, never procrastinated… Simply turned my desires, my wishes, my ideas into action and my...
1. How long do I have to live?

1. How long do I have to live?

On November 17th, 2021 I visited my GP because I felt something in my abdomen. After a series of exams, bad news. On December 7th we were told that I have a very rare form of cancer: uterine leiomyosarcoma (cancer in the smooth muscles and soft tissue of the uterus)...
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